The Magic of Mendocino

This past weekend I took my partner up to the seaside village of Mendocino. He had never been there before and it is one of my favorite places in the world; so I wanted to share it with him. We had a wonderful time. During that trip I was the happiest I have been in … Continue reading The Magic of Mendocino

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Pokemon GO as Physical Therapy?

Ever since I got back from conference I have been getting back into playing Pokemon GO, and found it to be a good motivator to get me to go for walks! Walking is really exhausting for me and can also be painful depending on how my joints/muscles are behaving that day. Regardless, I have been … Continue reading Pokemon GO as Physical Therapy?

Have Wheelchair, Will Travel

Just got back from visiting my relatives in the Midwest. It went well. The flights there and back went smoothly. I had no trouble getting through security with all my medical supplies. I even brought my wheelchair and it survived the trip. I did remove all the easily removable parts on the chair like the … Continue reading Have Wheelchair, Will Travel

Craving College

It's graduation season again, which means I am once again feeling a little envious. I have accepted that I am ill and will remain so for the rest of my life unless there is some sort of cure discovered in my lifetime. It's okay, I can and do still have a good life for the … Continue reading Craving College

A Good Day

I had a good, productive day yesterday. I got out to see friends, helped out a teenager with EDS/Dysautonomia that I have been watching a few hours a week while his mom is out running errands (he is a fall risk and can't be alone), and came up with another embroidery design to work on. … Continue reading A Good Day

Accessibility Ignorance

[image description: a parking space with the disabled access symbol painted on it. The space has been blocked off by fencing and is covered in construction debris] This is what the disabled parking spaces in a shopping center near me have looked like for the past six months! There is construction being done to the facades of … Continue reading Accessibility Ignorance

Ramblings/Life Update

*in radio advertiser voice* "Today's blog is brought to you by brain fog! It's like a Winter morning in San Francisco, but a lot less pretty..." I've been in a pain flare up for the past several weeks, which hasn't been fun, but I am coping. I started seeing a new physical therapist who is … Continue reading Ramblings/Life Update