Ever since I got back from conference I have been getting back into playing Pokemon GO, and found it to be a good motivator to get me to go for walks! Walking is really exhausting for me and can also be painful depending on how my joints/muscles are behaving that day. Regardless, I have been … Continue reading Pokemon GO as Physical Therapy?
If you don't have Gastroparesis [GP] or some other digestive disorder you might not know that some adults eat baby food [and not as a fetish thing. 'adult babies' is a fetish thing. and I mean, you do you buddy. sleep in a crib or whatever, but that's not my jam] When you have GP … Continue reading An Adult Reviews Baby Food
Just got back from visiting my relatives in the Midwest. It went well. The flights there and back went smoothly. I had no trouble getting through security with all my medical supplies. I even brought my wheelchair and it survived the trip. I did remove all the easily removable parts on the chair like the … Continue reading Have Wheelchair, Will Travel
It's graduation season again, which means I am once again feeling a little envious. I have accepted that I am ill and will remain so for the rest of my life unless there is some sort of cure discovered in my lifetime. It's okay, I can and do still have a good life for the … Continue reading Craving College
I had a good, productive day yesterday. I got out to see friends, helped out a teenager with EDS/Dysautonomia that I have been watching a few hours a week while his mom is out running errands (he is a fall risk and can't be alone), and came up with another embroidery design to work on. … Continue reading A Good Day
Had my yearly check up with my connective tissue disorder doctor today, just got home about an hour ago. Good news! My aorta is still doing fine! My doctor decided today to reclassify me as having Ehlers Danlos Syndrome (Hypermobility Type) instead of Marfan Syndrome. So yay, not likely to need heart surgery in the … Continue reading A Change in Diagnosis?
It isn't that stereotypical "sad and crying all the time" depressed that people without depression imagine. It's that "emotional equivalent of watching paint dry" kind of depressed where you don't enjoy all the things that you usually would and so you kind of just space out and go on autopilot through everything. Doing volunteer work … Continue reading Depressed? I guess?
*in radio advertiser voice* "Today's blog is brought to you by brain fog! It's like a Winter morning in San Francisco, but a lot less pretty..." I've been in a pain flare up for the past several weeks, which hasn't been fun, but I am coping. I started seeing a new physical therapist who is … Continue reading Ramblings/Life Update
Martina Stawski is my role model for doing my best to live well with chronic illnesses. She, with her husband Simon, runs the YouTube channel Simon and Martina along with the EatYourKimchi website. The two of them are Canadians that have been living in Asia the past ten years; first in South Korea for eight … Continue reading #BuildALadder
No matter how much I improve I will always have days where I can't leave the house; sometimes not even leave my bed. I've accepted that probably won't change any time soon. I am just grateful that I can go out more than I used to and that I can drive myself. However, it is … Continue reading How I Avoid Losing My Mind When I Can’t Leave The House.