I haven't updated here in so long. I don't know how often people find their way to my little corner of the internet, but I like sharing bits of my life in the hopes that someone else out there can relate or find my words helpful. On March 4th, 2019 my older sister received her … Continue reading Hi there, it’s been awhile.
Tag: Feeding tube
Have Wheelchair, Will Travel
Just got back from visiting my relatives in the Midwest. It went well. The flights there and back went smoothly. I had no trouble getting through security with all my medical supplies. I even brought my wheelchair and it survived the trip. I did remove all the easily removable parts on the chair like the … Continue reading Have Wheelchair, Will Travel
How I Avoid Losing My Mind When I Can’t Leave The House.
No matter how much I improve I will always have days where I can't leave the house; sometimes not even leave my bed. I've accepted that probably won't change any time soon. I am just grateful that I can go out more than I used to and that I can drive myself. However, it is … Continue reading How I Avoid Losing My Mind When I Can’t Leave The House.
Little by Little
I am making progress. I sometimes get down on myself and feel like I am stagnating, but then I have to remind myself how far I have come! A year ago I couldn't drive, didn't have a car, didn't have Wanda the Wheelchair, kept on having to recover from surgeries, and was still weak from … Continue reading Little by Little
Health Update
I saw my gastroenterologist and my dietician two weeks ago. Turns out I had misunderstood some things before. I don't have to be trying so hard to force myself to eat by mouth or wean myself off my tube feed. It is perfectly okay for me to rely on my tube for most of my … Continue reading Health Update
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