No matter how much I improve I will always have days where I can't leave the house; sometimes not even leave my bed. I've accepted that probably won't change any time soon. I am just grateful that I can go out more than I used to and that I can drive myself. However, it is … Continue reading How I Avoid Losing My Mind When I Can’t Leave The House.
I know my last post was all about acceptance, and everything I said in that post still holds true, but sometimes we get burnt out from working so hard to care for our finicky bodies. I just happen to be having one of those days right now. A day where I don't want to take … Continue reading When you feel burnt out
Some friends don't know how I cope with having multiple health conditions. Conditions that have required daily medications, tests, procedures, surgeries, a feeding tube, and physical therapy. Acceptance. That is how I do it. Once you find out you have illnesses that have no cure, you can be angry and spend all your time wishing … Continue reading Acceptance Is A Powerful Thing
Welcome to my little blog. I have been doing this whole chronically-ill-young-adult thing for awhile now, and I thought maybe some of my experiences could help someone else out there or make them feel less alone. I live with Marfan Syndrome, Dysautonomia w/ Gastroparesis, Hypothyroidism, and Celiac Disease. It took me a long time and … Continue reading Hello Internet. I am your friendly neighborhood cyborg!