Gettin’ Back to It

Finally dragged my butt back to the gym today. I have been going to PT twice a week, but I hadn’t gone to the regular gym in months.

Just did some water walking in the heated pool. Not going to be doing water aerobics again because I am pretty sure that is how my pelvis got knocked out of alignment. Simply walking laps in the water feels good on my joints and works my muscles.

Next time I will have to go at a time of day when there aren’t so many little kids to dodge. (they’re cute and all, but splash a lot).

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Craving College

It’s graduation season again, which means I am once again feeling a little envious.

I have accepted that I am ill and will remain so for the rest of my life unless there is some sort of cure discovered in my lifetime. It’s okay, I can and do still have a good life for the most part. I don’t generally waste much time wondering what could have been had I not had these illnesses.

That all being said; when it is graduation season and I see photos of all my friends graduating from various prestigious colleges I do get sad and jealous. Then I feel guilty for feeling jealous.

I have never been well enough to complete any college classes. In fact, since my health first really started going downhill a decade ago there have been only two years of school that I completed without significant absences. Eighth grade and tenth grade.

I want to go to college to study Biology and specialize in Genetics. I would love to be able to contribute to the research affecting the connective tissue disorders community.

Currently I am looking at various not-for-profit online colleges. Online college still takes a lot of energy; a brain that is hard at work uses A LOT of energy points. However, at least there is not the extra energy loss from traveling to school, sitting upright in uncomfortable lecture halls and labs, florescent lighting, and traversing campus to get from class to class. Having the option to stay in your pajamas and attend class from your favorite recliner sounds good to me.

I am not enrolled anywhere yet, just looking at some options.

Prepping for Flight

I haven’t done any airplane travel in a year and a half. I only ever fly to go visit extended family in the Midwest, and we don’t get the chance to do that super often. Well, next month I am finally going with my mom and siblings to go visit all our relatives again.

Which means it’s time to…

Plan What to Pack!

I used to try to pack as little as possible, but that was when I was a little kid with no medical supplies and even less concern for my physical appearance than I have now.

Now I need to make sure I pack all my medications, hydration mix, tube feed supplies, tape for my joints, comfy clothes, compression socks, hot/cold packs, and whatever mobility aids I deem necessary.

Haven’t decided if I want to bring my own wheelchair or not. Wanda is a pretty sweet ride, but I would worry about it getting damaged by the airline. However, I would not be able to enjoy shopping days with my aunts very much without a wheelchair.

I have almost a month to figure it all out, so it should be fine. I know the trip will be tiring, but it will be worth it to see family. I haven’t seen my grandparents in a long time, and my cousin has a six month old baby who I have not gotten to meet yet.