Resources

Here are some resources for people out there struggling with similar health issues. You are not alone!

Dysautonomia International: https://www.dysautonomiainternational.org

The Marfan Foundation (the foundation deals with Ehlers Danlos and Loeys-Dietz patients too): https://www.marfan.org

Dysautonomia Youth Network of America: https://www.dynainc.org

The Ehlers-Danlos Society: https://www.ehlers-danlos.com

And if you are struggling with depression, as a lot of people dealing with chronic pain/illness do, please seek the help of a qualified mental health treatment professional. There is help and hope out there.

 

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