Here are some resources for people out there struggling with similar health issues. You are not alone!

Dysautonomia International:

The Marfan Foundation (the foundation deals with Ehlers Danlos and Loeys-Dietz patients too):

Dysautonomia Youth Network of America:

The Ehlers-Danlos Society:

And if you are struggling with depression, as a lot of people dealing with chronic pain/illness do, please seek the help of a qualified mental health treatment professional. There is help and hope out there.