I haven't updated here in so long. I don't know how often people find their way to my little corner of the internet, but I like sharing bits of my life in the hopes that someone else out there can relate or find my words helpful. On March 4th, 2019 my older sister received her … Continue reading Hi there, it’s been awhile.
If you don't have Gastroparesis [GP] or some other digestive disorder you might not know that some adults eat baby food [and not as a fetish thing. 'adult babies' is a fetish thing. and I mean, you do you buddy. sleep in a crib or whatever, but that's not my jam] When you have GP … Continue reading An Adult Reviews Baby Food
It's the most dreaded season for POTSies everywhere, the time of year when it feels like we must surely be living in Satan's buttcrack; it's...SUMMER! I know a lot of people love Summer and frolicking in the sun, working on their tans clad in nothing but swimsuits. I, however, am a pale ghost lady who … Continue reading A POTSies Guide to Surviving Summer!
I got home from the conference yesterday afternoon. It was a magical weekend, getting to be around so many other people who understand what it is like living with a connective tissue disorder. I miss all my new friends already and I wish I didn't have to wait a full year for all of us … Continue reading Returning Home
I haven't done any airplane travel in a year and a half. I only ever fly to go visit extended family in the Midwest, and we don't get the chance to do that super often. Well, next month I am finally going with my mom and siblings to go visit all our relatives again. Which … Continue reading Prepping for Flight
No matter how much I improve I will always have days where I can't leave the house; sometimes not even leave my bed. I've accepted that probably won't change any time soon. I am just grateful that I can go out more than I used to and that I can drive myself. However, it is … Continue reading How I Avoid Losing My Mind When I Can’t Leave The House.
I am making progress. I sometimes get down on myself and feel like I am stagnating, but then I have to remind myself how far I have come! A year ago I couldn't drive, didn't have a car, didn't have Wanda the Wheelchair, kept on having to recover from surgeries, and was still weak from … Continue reading Little by Little