I saw my gastroenterologist and my dietician two weeks ago. Turns out I had misunderstood some things before. I don't have to be trying so hard to force myself to eat by mouth or wean myself off my tube feed. It is perfectly okay for me to rely on my tube for most of my … Continue reading Health Update
Tag: marfan syndrome
When you feel burnt out
I know my last post was all about acceptance, and everything I said in that post still holds true, but sometimes we get burnt out from working so hard to care for our finicky bodies. I just happen to be having one of those days right now. A day where I don't want to take … Continue reading When you feel burnt out
Acceptance Is A Powerful Thing
Some friends don't know how I cope with having multiple health conditions. Conditions that have required daily medications, tests, procedures, surgeries, a feeding tube, and physical therapy. Acceptance. That is how I do it. Once you find out you have illnesses that have no cure, you can be angry and spend all your time wishing … Continue reading Acceptance Is A Powerful Thing
Hello Internet. I am your friendly neighborhood cyborg!
Welcome to my little blog. I have been doing this whole chronically-ill-young-adult thing for awhile now, and I thought maybe some of my experiences could help someone else out there or make them feel less alone. I live with Marfan Syndrome, Dysautonomia w/ Gastroparesis, Hypothyroidism, and Celiac Disease. It took me a long time and … Continue reading Hello Internet. I am your friendly neighborhood cyborg!
cyberneticrose 