It's graduation season again, which means I am once again feeling a little envious. I have accepted that I am ill and will remain so for the rest of my life unless there is some sort of cure discovered in my lifetime. It's okay, I can and do still have a good life for the … Continue reading Craving College
Prepping for Flight
I haven't done any airplane travel in a year and a half. I only ever fly to go visit extended family in the Midwest, and we don't get the chance to do that super often. Well, next month I am finally going with my mom and siblings to go visit all our relatives again. Which … Continue reading Prepping for Flight
Getting Work Done My Way
I am helping make decorations for the wedding of some friends. Cutting out the fabric for the banners is the most time consuming part at the moment. Right now working from my bed is more comfortable than standing at my sewing table, so I brought my cutting mat up to my room and am cutting … Continue reading Getting Work Done My Way
A Good Day
I had a good, productive day yesterday. I got out to see friends, helped out a teenager with EDS/Dysautonomia that I have been watching a few hours a week while his mom is out running errands (he is a fall risk and can't be alone), and came up with another embroidery design to work on. … Continue reading A Good Day
A Change in Diagnosis?
Had my yearly check up with my connective tissue disorder doctor today, just got home about an hour ago. Good news! My aorta is still doing fine! My doctor decided today to reclassify me as having Ehlers Danlos Syndrome (Hypermobility Type) instead of Marfan Syndrome. So yay, not likely to need heart surgery in the … Continue reading A Change in Diagnosis?
[image description: a parking space with the disabled access symbol painted on it. The space has been blocked off by fencing and is covered in construction debris] This is what the disabled parking spaces in a shopping center near me have looked like for the past six months! There is construction being done to the facades of … Continue reading Accessibility Ignorance
I Did The Thing!
Art, art is the thing. I went out and got a little watercolor palette and some brushes. My drawing skills have atrophied a bit since I have almost exclusively been working in textiles for the past six months. I really enjoyed getting back to drawing and painting today. Here is what I have done so … Continue reading I Did The Thing!
The Need to Feed My Artistic Spirit.
I haven't been doing enough artwork lately. I have lacked the inspiration and motivation to do so. I *want* to do artwork, but every time I pick up a pen/brush/sewing needle my brain just goes "uuuhhhhhh, sorry boss, I've got nothing." Excited for the painting class I will start taking next month. I haven't worked … Continue reading The Need to Feed My Artistic Spirit.
Depressed? I guess?
It isn't that stereotypical "sad and crying all the time" depressed that people without depression imagine. It's that "emotional equivalent of watching paint dry" kind of depressed where you don't enjoy all the things that you usually would and so you kind of just space out and go on autopilot through everything. Doing volunteer work … Continue reading Depressed? I guess?
*in radio advertiser voice* "Today's blog is brought to you by brain fog! It's like a Winter morning in San Francisco, but a lot less pretty..." I've been in a pain flare up for the past several weeks, which hasn't been fun, but I am coping. I started seeing a new physical therapist who is … Continue reading Ramblings/Life Update